Category Archives: Research

Free Report on Autism Interventions

The U.S. National Autism Center has released the results of the largest systematic review to date of interventions for ASD. The report identifies effective, research-based interventions for individuals across the lifespan. The findings identify 14 “Established Interventions” for children and adolescents that have the most research support, produce beneficial outcomes, and are known to be effective. Find the report in the ACT Information Database.

Research Study on Sleep and Autism Seeks Participants

PARENTS Research Study – Sleep and autism: Treatment barriers and facilitators

Did you know that between 50-70% of children with autism spectrum disorders (ASD) have behavioural sleep problems?

Researchers from the University of Dalhousie are doing an online study to learn about parents’ experiences seeking and using treatment for insomnia in their children with ASD. This study will involve completing online questionnaires and participating in online, regional focus groups. Participation should take no more than 2 hours of your time. The study is being conducted through the IWK Health Centre and Dalhousie University in Halifax, Nova Scotia.

If you are a parent of a child aged 4 – 12 who has ASD and behavioural sleep problems (currently or in past), you can help us identify ways to increase families’ access to and uptake of treatment for behavioural sleep problems in children with ASD.

Focus groups will take place on the following dates for parent participants from each region:

*     Western Canada (British Columbia, Alberta, Saskatchewan, Manitoba) – Mon. May 25th, 2015, 7 – 8:30 p.m. M.D.T.
*     Ontario – Tues. May 26th, 2015, 7 – 8:30 p.m. E.D.T.
*     Quebec – Wed. May 27th, 2015, 7 – 8:30 p.m. E.D.T.
*     Atlantic Canada (New Brunswick, Newfoundland & Labrador, Nova Scotia, Prince Edward Island) – Thurs. May 28th, 2015, 7 – 8:30 p.m. A.D.T.
*     Northern Canada (Yukon Territory, Northwest Territories, Nunavut) – Fri. May 29th, 2015, 7 – 8:30 p.m. C.D.T.

Eligible participants will be entered into a draw to win a $50 gift card for www.amazon.ca. They will also receive resources on treating sleep problems in kids with ASD, including a video presentation by the research team.

Find out whether you are eligible to participate! They ask that interested parents complete a brief online screening questionnaire. To find out more and to complete the questionnaire, please follow the link directly to the study: http://tinyurl.com/parenteligibility 

This study is being conducted by Kim Tan-MacNeill (Dalhousie University) as part of her PhD dissertation research, supervised by Dr. Penny Corkum (Dalhousie University LABS), and Dr. Isabel Smith (IWK Autism Research Centre). If you would like more information, please contact Kim Tan-MacNeill by email at [email protected]

Study seeks children with autism for interviews (Oct 10 to Nov 15)

Professor William McKellin, Department of Anthropology UBC, is looking for parents who have a child with autism to participate in interviews led by students in medical anthropology.  The interviews will focus on the impact of genetic and chronic illness on individuals and  their families.  Interviews will be done in the homes of the participants between October 10th and November 15th and should be 1 to 1½ hours.  Interviews will cover such topics as individuals’ basic biographies, their experience of the condition, how it has affected their family and social life, and their experiences with health professionals, medical institutions, and service agencies.  Students will maintain interviewee’s confidentiality by using pseudonyms.  If interested please contact Professor Bill McKellin: (604) 882-2756 or email at [email protected]

News from the International Meeting for Autism Research (IMFAR 2014)

ACT’s Executive Director, Deborah Pugh, went to IMFAR 2014 in Atlanta in May 2014.

She reports that it was packed with presentations and posters and with 1,800 people attending, it was hard to see everything.

Autism Speaks provides a useful overview on their site, with summaries of talks, video interviews and highlights. You can also browse the IMFAR site for talk descriptions. For the first time ever, there was a large focus on the realities of adults with autism. The results were striking as these are large studies. The situation is likely to be very similar to Canada as these results were based on adults who had health insurance and was based on their medical records.